Sunday, February 20, 2011

Munchkin is 3!

I am amazed! I love this kid so much! I love her spunk and her energy. I love her confidence and paradoxically her shyness. She pretends to read and cracks me up with her stories and the songs she makes up. She loves to sing! I'm amazed at her artistic ability and love to hear her tell me about her stories. I struggle with munchkin more than any other kid. She's willful and defiant and still throws tantrums like a pro, but she's getting better at controlling herself and I'm getting better at learning to pick my battles. She has a zest for life that I hope she never loses and I know I learn a lot from her in the coming years. Happy Birthday to my sweet little Munchkin!!
This year I went on strike. I am so tired of making a cake in a 9x13 pan when there's only 4 of us to eat it. I refuse! So we took my middle out for dinner - she wanted beans, her favorite - and went to Bajio where she got a big plate of black beans. I was feeling guilty about not making her a cake when I remembered that The Sweet Tooth Fairy was across the street. I've never been there but we decided to go and have her find her perfect cupcake. Folks, I cannot recommend this enough if you don't have enough people to eat a whole cake.
The rest of us had leftover valentine cookies and she still got to blow out her candles. And those cupcakes are amazing! She couldn't finish it so I had a bite. I never knew a cupcake could taste like that!
I got tired of her stealing diapers so I made her some of her very own "cloth diapers" out of fleece. SO EASY and a huge hit!! Her brother gave her a feather boa, also a huge hit.
This next part is more for family and friends who have been wondering about Munchkin's illness. We went to see her pediatrician this week who gave her a working diagnosis of PFAPA, which stands for Periodic Fever, Apthous stomatitis, Pharyngitis and Adenitis. There are no tests yet to confirm it, we just have to rule out other diseases in the periodic fever family (she had blood/urine tests to rule out other diseases). What this means is she gets really high fevers (like 105) every month or so which last for a few days. She does get canker sores (that's what apthous stomatits is), but I don't know if they're related to her fevers or not. She doesn't have it as severe as some of the kids I've read about so I'm still not sure if this is really it, but for now it seems to fit the best. Some of those kids get really enlarged lymph nodes and really bad sore throats and their fevers last all week.
We don't have a lot of info and I hope the specialist we see next month will have more answers but I'm not too optimistic. It's listed on the National Institute of Health's Office of Rare Diseases so they just don't know a lot yet. But NIH is currently doing studies and I'm hopeful about that.
The specialists may want to do genetic testing to rule out other periodic fevers, but since she doesn't have any of the associated symptoms I'm not sure. Right now it's wait and see. The good news is that this is simply an inconvenient disease with no known long term effects that she'll most likely outgrow. Either that or we'll get her tonsils removed since it has been shown to be effective treatment. I'm leery of that though since she doesn't get sore throats with it.
That should catch everyone up where we're at with it. I've spent some time on NIH's website reading the literature about it, but right now it's mostly theories and anecdotes. The nice part will be having a doctors note showing she isn't contagious so she can go to things (like church) shortly after a fever!

5 comments:

  1. Aww, happy birthday to her!!!!!!! And glad you are getting answers!

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  2. Happy Birthday to Munchkin! Gosh, 3 years...I remember the day she was born. And I looooooooooooooooove Sweet Tooth Fairy. Mmmmmm, my mouth is watering. Good to get answers for her fevers.

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  3. Oh man, Sweet Tooth Fairy is delicious. And Bajio too. Clearly, we are long lost twins or something. We should get our newly minted 3 year olds together and play :)

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  4. We should! We even have the same name, it's crazy!!

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  5. I can't believe she's 3! Congratulations on a brand new 3 year old girl.

    And re: fevers. I hope one day soon she just outgrows it, and poof all done. :-)

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